November 2024 Newsletter - Quest 144

We are pleased to bring you a Special Edition of our Quest newsletter.

In this issue:

National ME/FM Action Network Takes ME/FM Issues to the United Nations

  Introduction

  CRPD Submission – English

  CRPD Submission - French

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Fall 2024 Newsletter - Quest 143

We are pleased to bring you the Fall 2024 edition of our Quest newsletter.

In this issue:

Introduction

• Armand Lupien Raises $12,303 for FM research

◦ MAPLE-LEAF Research Project

• News Release - ICanCME Research Network Secures Continued Funding for the Next 5 Years

• Two US Long COVID Reports 

◦ A Long COVID Definition    

◦ Long-Term Health Effects of COVID -19

• UK Inquest into Death of Maeve Boothby O’Neil

• Update - Applying for Canada Pension Plan-Disability

• Valerie Free Inducted into Warburg School Wall of Fame

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Summer 2024 Newsletter - Quest 142

We are pleased to bring you the Summer 2024 edition of our Quest newsletter.

In this issue:

• Clinical Tools for ME/CFS, FM and POTS

• NIH Statement: Advancing Research on ME/CFS

• Biking Across Canada for FM Research

• ME/CFS and Anaesthesia

• 9 Common Types of Guilt People With Chronic Illness Experience

• What the Pamphlets and Documentaries Didn’t Tell Me About Life With Chronic Illness

• Explaining ME to Long-Covid Researchers

• Recent Articles on ME/CFS

• Canada Disability Benefit – Reactions

  • Joint Statement from National Disability Network’s Response to Budget 2024

  • Advocacy is a Long Road

Download the pdf HERE

Spring 2024 Newsletter - Quest 141

We are pleased to bring you the Spring 2024 edition of our Quest newsletter.

Download the pdf HERE

In this issue:

Canada Disability Benefit Update 

2024 Budget Announcement 

An Opportunity? 

Qualifying for the DTC 

Eligibility Criteria 

Applying for the DTC 

Identifying as Disabled 

Disability Theory 

The ICF 

The CRPD 

Environmental Factors 

Disability Terms with Multiple Meanings 

Next Steps

Disability Tax Credit Basics 

Applying for the DTC with ME/FM 

Winter 2024 Newsletter - Quest 140

We are pleased to bring you the Winter 2024 edition of our Quest newsletter.

Download the pdf HERE

In this issue:

Dear Friends 

2024 Federal Budget Submission 

Canada Disability Benefit Submission 

Letter to Mnister of Health - Addressing Long-COVID

Effects of ME by Ken Morgan 

The WASF3 Protein 

Medical News Bulletin - NIH Scientists Discover Biological Basis for ME/CFS Symptoms 

Cellular Stress Described 

US ME/CFS Prevalence Statistics 

Three Articles on Coping 

Canadian Disability Statistics 

Articles on Severe and Very Severe ME/CFS

FM - A Multi-System Illness