Welcome to National ME/FM Action Network

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10

Reasons to become a member of the National ME/FM Action Network.

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808,700

people in Canada were
diagnosed with
ME/CFS and/or FM

ABOUT US

People helping people help themselves

The NATIONAL ME/FM ACTION NETWORK became a Canadian charitable organization on June 18, 1993 dedicated to Myalgic Encephalomyelitis, also known a...

WHAT IS ME/CFS?

ME stands for Myalgic Encephalomyelitis

WHAT IS ME/CFS? ME refers to Myalgic Encephalomyelitis, a term used in Britain for many years and is used to describe the disease process. &n...

WHAT IS FM?

FM stands for Fibromyalgia

Fibro refers to fibrous tissue – ligaments and tendons, myo refers to muscle, and algia refers to pain. Fibromyalgia involves widespread pai...

Unheard Voices (Updated)

Special Project

"Unheard Voices"....

Tell me YOUR Story Sharing Experiences of living with ME/CFS and FM. If you like to participate, please contact me and send me your story. This e-mail address is being protected from spambots. You need JavaScript enabled to view it Please click to view...

Unheard Voices here

LATEST NEWS

2020-10-02 NETWORK NEWS

ABOUT US

WHAT IS ME/CFS?

WHAT IS FM?

Unheard Voices (Updated)

Patient Resources

ME RESEARCH REGISTRY

ME RESEARCH REGISTRY

GOVERNMENT RELATIONS

Medical Resources

LATEST NEWS

CTV - W5 program on long-haulers

Presentation to Ontario Minister of Finance

Emails to Prime Minister re Covid and ME/FM

Experiences with Covid-19

What's Up @ CIHR?

CCDP Anounces New Medical Director

Submission on proposed Canadian Research and Development Classification (CRDC)

ME Research Registry

Participating in Pre-budget Consultation

Letter to the new President of CIHR

Disability Tax Credit (DTC) Developments

Pre-Conference Videos

Awareness Events 2018 – PEI

National ME/FM Action Network at the Montreal Conference on ME/CFS May 3-5, 2018

ME/CFS Collaborative Pre-Conference May 3rd - Update

Pre-Conference Workshop on Meeting Unmet Needs May 3, 2018

Update Feb 25: ME/FM Network raises DTC issues with two Canadian ministers

Pre-Conference - Enough is Enough

Network comments on Common Data Element proposal

1st Canadian Collaborative Team Conference

Is the Network a national disability organization?

Webinar on Disability

Follow-up on Disability Issues with the Federal Government

ME/CFS Canadian Researcher Looking for Identical Twins

ME/FM Network raises issues with the Disability Tax Credit

Submissions to Science Panel

Disability Consultations

Canadian Government Turns Down ME/CFS Grant Application

Important New Developments

Network meets with Chair, HC

Parliamentary Breakfast 2016

May 12, 2016 Events

CIHR announces competition for ME/CFS “catalyst grant"

Documentary film " Forgotten Plague

Article on Diagnosis and Management of ME/CFS now available for free

Network writes CIHR about United States developments; CIHR responds

Canada Election 2015

ME/FM Research notes

FIBROMYALGIA IN DANGER OF LOSING ITS IDENTITY

Material from the CIHR Research Workshop, September 26th, 2014

PhD Research on FM

CIHR Research Workshop

Complex Chronic Diseases Program (CCDP) - Fixing Relationships

Email to BC Minister of Health and the Premier of BC, July 2nd, 2014

Network makes presentation at Ontario Conference

The Network and MEAO make a joint submission to the Accessiblity for Ontarians with Disability Act (AODA)

Dr Alison Bested leaves BC Program

Presentation to the Public Health Agency and Canadian Institutes of Health Research.

CIHR is undertaking a consultation process reviewing its slate of institutes.

Ontario Ministry of Health announces 2 new fellowships

Participating in the ESDC consultative process:

Government provides information on ME/CFS

Network makes presentation at IACFS/ME Conference 2014

Two meetings in Montreal - March 7th

Information Meeting on ME/CFS

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