We assist people with Myalgic Encephalomyelitis and Fibromyalgia. Educational resources, the medical community and educators.

 Myalgic Encephalomyelitis and Fibromyalgia are illnesses with high levels of disability, health care utilization, unmet health care needs, unmet home care needs, poverty, food insecurity and social isolation. 

Our Mission
What We Do

The NATIONAL ME/FM ACTION NETWORK became a Canadian charitable organization on June 18, 1993 dedicated to Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome and Fibromyalgia through support, advocacy, education and research. Since its founding, the organization has been an ACTION Network. Some of our accomplishments are:

 Myalgic Encephalomyelitis
Myalgic Encephalomyelitis
Myalgic Encephalomyelitis is a complex chronic illness affecting multiple body...
Resources
Resources
You can download and print information sheets for ME and FM here. If you would like folded glossy brochures...
Fibromyalgia
Fibromyalgia
Fibromyalgia is a complex physical illness characterized by chronic widespread pain of the muscles...
Become A Volunteer
Become A Volunteer
Be part of our valuable and strong team of volunteers!


Meet the Team

The National ME/FM Action Network was founded in 1993 by Lydia Neilson. The organization has evolved over time as needs have changed. The network works hard to raise issues regarding ME/CFS and FM with federal government officials and politicians. Through direct contact with government administrators, we continue to advocate for better awareness, education, health care, disability support and equitable research funding.

Lydia E. Neilson, M.S.M.
Lydia E. Neilson, M.S.M.Founder and Chief Executive Officer
Lydia E. Neilson spearheaded the Canadian Consensus Criteria. As a result, she was awarded the Meritorious Service Award from the Governor General.
Margaret Parlor
Margaret ParlorPresident
Margaret Parlor is originally from British Columbia and moved to Ottawa where she worked for the federal government as a statistical, and policy analyst, project and program manager.

Latest News

WHAT MATTER MOST TO OUR FRIENDS AND COMMUNITY

Dr Byron Hyde, a Canadian physician, became interested in Myalgic Encephalomyelitis in the 1980's and stayed interested for the rest of his life. Here is a profile of him written on behalf of the Nightingale Research Foundation, an organization he established in

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The National ME/FM Action Network has filed a submission. A committee of the United Nations is currently reviewing Canada's implementation of the Convention on the Rights of Persons with Disabilities (CRPD). Disability organizations have been invited to bring up issues with the committee. The

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We received a delightful email from Armand Lupien. He is planning a bicycle ride across Canada this summer to raise awareness of Fibromyalgia and chronic pain diseases. He will also be fund-raising. Donations will given to the National ME/FM Action Network. His sister has FM and he sees what

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Statistics Canada recently provided the National ME/FM Action Network with two spreadsheets showing prevalence figures for Chronic Fatigue Syndrome, Fibromyalgia, both CFS and FM, and Multiple Chemical Sensitivities. These figures are from the Canadian Community Health Survey

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Patient & Medical Resources

Quest News Letters

"The National ME/FM Action Network publishes a quarterly newsletter, which is included in our membership fee. "

Consensus Documents

"The consensus documents for ME and FM were each developed by an international panel of experts with expertise in research"

GOVERNMENT RELATIONS

The following are the communications that have occurred between the National ME/FM Action Network and specific...

ME RESEARCH REGISTRY

About 18 months ago, I started a registry of ME/CFS research studies recruiting participants. It was the result of trying to figure...

Patient - Resources

You can download and print information sheets for ME/CFS and FM here. If you would like folded glossy brochures...

CPP Disability Guide

The National ME/FM Action Network is pleased to provide you with the latest edition of our Canada Pension Plan (CPP) Disability Guide.

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