Tuesday, 26 July 2011 00:00 Last Updated on Monday, 01 August 2011 15:10
News - NETWORK NEWS
UPDATE ON NEW INTERNATIONAL DEFINITION
Dear Friends:
There has been much discussion about how the new international definition by Dr. Bruce Carruthers et al fits with the 2003 Canadian ME/CFS definition and that everyone is asking for a response by the National ME/FM Action Network.
Please understand that it is not up to the National ME/FM Action Network to either accept or reject the definition nor how it fits with the 2003 definition. This is a matter that only the scientific community can discuss and decide upon. Our Network's responsibility would be to follow their lead.
The International Association for CFS/ME (IACFS/ME) www.iacfsme.org who has over 500 scientists, researchers and medical members will shortly be issuing an announcement on this matter. It will also be discussed at the IACFS/ME research and clinical conference our organization is hosting in September.
The definitions will be discussed in September. However, before an official response is possible, we need to know what the response is to the new definition and are closely monitoring the doctors and scientific communities response. Presently it is being discussed by those in authority as you have to realize that it is not our Network who can make that decision nor any other group.
The responsibility of the National ME/FM Action Network is and will always be to do what is best for our ME/CFS and FM population by keeping up to date on research and treatment and give support to those in need of same.
Lydia E. Neilson, MSM
Founder & Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK